Last week was a short week due to the Victoria Day long weekend, and as usual, I was a little disoriented and was checking both my iPhone and Moleskine calendars more than usual.
We had three appointments last week, one on Wednesday and two on Friday. I would say that two appointments is probably a typical week for us at this point. On Wednesday we drove the forty minutes to the audiologist who dispenses William’s hearing aid (we have a separate team for his cochlear implant). It had been a while since a hearing test was performed on just his right ear (hearing aid side), so she performed this test in the sound booth. I am happy to report that the results of this test were relatively the same as the last test performed, meaning his hearing has not degraded during this time.
It turns out that the hearing aid wasn’t working as well as it should be, so it was sent away to be fixed before it became a problem. We received a loner to use until the hearing aid is fixed and returned to us. There’s always something! Because William can’t advocate for himself yet, it is up to his parents and professional team to make sure that all of his equipment is working properly. If it isn’t, then he is missing listening and learning opportunities, and all of the activities we do at home are not having the impact they should.
On Friday we drove the hour and fifteen minutes to the Auditory Verbal Therapist we see on a weekly basis. Every other week we drive to her home for therapy, and in between she comes to our home for therapy. William knows where we are when we turn into her neighbourhood, and he gets excited, making lots of noise and dancing in his car seat. I am so glad he enjoys his sessions and doesn’t see them as work! We were there for an hour and brought home a new activity to do this week, a kitchen game that we made cut and paste style, to learn names of common kitchen objects and food. We will probably play this game when William wakes up from nap today, as I just finished cutting out all the pieces last night.
Our next appointment was two hours later, twenty minutes further into the city at the children’s centre. I swear we were only at Chapters for 45 minutes, but with the ridiculous amount of construction detours in the city, we really cut it close. This appointment was to fit and pick up William’s new modified high chair. The carpenter used one of our dining chairs and retrofit it with a custom seat for William. I have to say, it is far above what I was expecting. He took the whole seat off the chair and inserted a little seat, backrest and footrest. It really takes a picture to explain. The problem with this is that once home, William would not sit in the chair. After months of complaining about how gross his current high chair is, I was really looking forward to just chucking it, and now I can’t until he accepts this new chair… Maybe it’s time to hide the old one!
By the time we got home from the city on Friday, we had been gone for almost 8 hours. However much I like stacking appointments to make one trip instead of two, it makes for an exhausting day. I always pack William a lunch and snacks and he can just eat on the go while I am pushing him around in the stroller, but I usually forget to eat and survive on coffee and possibly a banana. This time spent and distance travelled is one of the compromises made when choosing to live in a rural small town, but ultimately, it is one that we feel is worthwhile to make.